Metachromatic Leukodystrophy (MLD) Latest Articles

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Sep 3, 20223 min read

Massachusetts Recognizes Leukodystrophy Awareness Month & Lights Up for Leukodystrophy

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Mar 25, 20222 min read

Inspirational Child with MLD, Calliope Joy, Passes Away

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Sep 22, 20212 min read

Jim Flynn Runs a Marathon to Cure MLD

curemld

Aug 10, 20214 min read

Cure MLD, The Calliope Joy Foundation and NORD Launch a Research and Engagement Study of MLD

Research study is open to participants worldwide to advance understanding and treatments for Metachromatic Leukodystrophy, a recessive...

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Feb 27, 20201 min read

Mothering Cal

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Feb 20, 20201 min read

Gene Therapy Trial Wrenches Families as One Child’s Death Saves Another

curemld

Feb 12, 20201 min read

I can’t save my daughter from a terminal illness. But we can help save other children from the same

curemld

Feb 5, 20201 min read

How much would you pay for the miracle of gene therapy?

curemld

Jan 29, 20201 min read

Five times an Illinois health insurer rejected out-of-state treatment for a 4-year-old

curemld

Jan 22, 20201 min read

7 Patients Who Are Leading the Charge Against Their Rare Disease

curemld

Jan 15, 20201 min read

Medicaid covers sick or dying children. But it takes ‘going to battle’ to get it

curemld

Jan 8, 20200 min read

MLD father Les Martin's inspiring work for newborn screening.

curemld

Jan 8, 20201 min read

Read Cure MLD co-founder's oped for STAT

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Jan 8, 20201 min read

Chicago Tribune chronicles MLD mom's fight for Medicaid approval. Read the story.

curemld

Jan 8, 20204 min read

Why did we start Cure MLD?

curemld

Jan 8, 20203 min read

A new decade brings new hope

curemld

Apr 12, 20191 min read

Mothering Cal - What I learned from parenting a terminally ill child.

curemld

Apr 12, 20191 min read

The Philadelphia Family Helping to Drive Research on MLD

curemld

Apr 12, 20191 min read

IN THE NEWS

Massachusetts Recognizes Leukodystrophy Awareness Month & Lights Up for Leukodystrophy

Inspirational Child with MLD, Calliope Joy, Passes Away

Jim Flynn Runs a Marathon to Cure MLD

Cure MLD, The Calliope Joy Foundation and NORD Launch a Research and Engagement Study of MLD

Mothering Cal

Gene Therapy Trial Wrenches Families as One Child’s Death Saves Another

I can’t save my daughter from a terminal illness. But we can help save other children from the same

How much would you pay for the miracle of gene therapy?

Five times an Illinois health insurer rejected out-of-state treatment for a 4-year-old

7 Patients Who Are Leading the Charge Against Their Rare Disease

Medicaid covers sick or dying children. But it takes ‘going to battle’ to get it

MLD father Les Martin's inspiring work for newborn screening.

Read Cure MLD co-founder's oped for STAT

Chicago Tribune chronicles MLD mom's fight for Medicaid approval. Read the story.

Why did we start Cure MLD?

A new decade brings new hope

Mothering Cal - What I learned from parenting a terminally ill child.

The Philadelphia Family Helping to Drive Research on MLD

To really help a family in crisis, here are a few good rules to follow

ConnectING FAMILIES

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